The story about Allie

         I didn’t get much chance lately to write here… We had way to many activities and i will try to outline couple of them .
Last week we had “Walk for Allie” (MDA Seek-a-Miracle for Friedreich’s Ataxia)

Click here so you can read about Allie :

http://www.reporterherald.com/feature-story.asp?ID=14473

I happen to know Allie personally, also her brother Aaron who is affected by the same disease as Allie.  I am also honored to know their mother Sue, one of the most couregoius and most wonderful woman I have ever met.
When I first met Allie about 6 months ago I didn’t notice anything unusual. I just taught of her as a beautiful young girl with much talent for art and a very kind personality. Then  I learned of her condition and that it’s getting harder for her every day, even a simple things like walking and standing up. I heard from  her parents the story about how they found out about their kids disease and how that changed their lifes forever. Their courage and faith give hope and comfort to many others.
This is a  the website where the donations would go toward FA research:

https://www.mdaevent.org/ParticipantInfo.aspx?j=0133e2ad-a66c-4783-a93d-d3b16a92828c